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Parkinson Voice Project

Parkinson Voice Project

Speech Therapy for People with Parkinson’s

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Home / Education & Training / Lecture Series / Strategies for Building Your Care Team to Live Well with Parkinson’s

Strategies for Building Your Care Team to Live Well with Parkinson’s

Presenter

J. Michael Desaloms, MD

Financial Relationship: None
Nonfinancial Relationship: None

Connie Carpenter Phinney won 12 U.S. cycling championships and four medals at the cycling world championships in both the pursuit and road race. Connie is married to Davis Phinney who was a medalist at the 1984 Olympics in the team time trial and later rode professionally for the 7-Eleven team, winning two stages at the Tour de France. Davis was diagnosed with Parkinson’s at the age of 40. Together, Connie and Davis established the Davis Phinney Foundation, a nonprofit organization dedicated to helping those with Parkinson’s “live well today.” Connie is an entrepreneur, author, artist, and life-long athlete who is extremely passionate about helping those living with chronic illness, especially spouses and family members dealing with Parkinson’s. Connie particularly enjoys sharing her experiences and is an eloquent and humorous public speaker.

Lecture Description

Parkinson’s disease is an unpredictable condition that has multiple challenges, and as Connie Phinney likes to say, “doesn’t play nice.” Living well with Parkinson’s requires both patient and a care partner to develop a trustworthy, reliable “Care Team.” View this session to learn who the key members of a productive Care Team are from a woman who has lived with chronic illness most of her life—her mother was diagnosed with multiple sclerosis when Connie was 5-years-old, and her husband was diagnosed with Parkinson’s when he was 40. Connie describes her approach to caregiving that emphasizes teamwork, creativity, and thinking outside the box.

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