Information about our Organization and Website

Modern information and communication technologies play a fundamental role in the activities of an organization like Parkinson Voice Project. We are based in The United States of America.

Our principal activities are:

  • Providing education, speech therapy, practice, and encouragement to people diagnosed with Parkinson’s disease and related movement disorders.
  • Providing education and support to the families of those diagnosed with Parkinson’s disease and related movement disorders.
  • Providing clinical training, guidance, and support to speech-language pathologists and speech therapy clinics.
  • Facilitating clinical research related to speech and swallowing issues in Parkinson’s disease and related movement disorders.
  • Conducting fundraising to support our clinic and programs.

Privacy Policy

This policy was last updated on December 2, 2022.

This privacy policy is meant to inform you (the user) how the Parkinson Voice Project and its employees and contractors (“we,” “us,” or “our”) collect and use your personal information.

Changes to this policy

While this policy may change from time to time, and at our sole discretion, we comply with the GDPR (General Data Protection Regulation) set out by the EU Parliament in April 2016. We will never alter our usage of your data without your consent, even if we change this policy, except as required by law.

What does this policy cover?

This policy applies only to your dealings with Parkinson Voice Project and to the domain https://parkinsonvoiceproject.org and its contents and subdomains. On this website, we may occasionally link to other outside websites or services. Each of these outside sites has its own privacy policy and is not covered by this policy.

What is personal information?

For the purposes of this policy, personal information is anything that can be tied directly to you as an individual. This includes information such as:

  • Names
  • Usernames
  • Passwords
  • Email Addresses
  • IP Addresses
  • Mailing Addresses
  • Phone Numbers

and any other information that could be, alone or together, traced back to you as an individual.

What information do we collect?

When you visit this website or interact with us (on the phone, in person, via email, etc.) you disclose two types of information: Information that you voluntarily disclose (such as signing your name to an email or leaving your phone number on our voice mail) and information that gets automatically collected (such as a server logging that you visited our website).

What information do we automatically collect?

While we do not request or require any personal information as a condition of your use of this website, our server does log usage information. This includes your IP address, as well as some basic information about the device that you used to connect to our website.

We automatically collect no other personal information from you as part of your use of this website.

Cookies

Cookies are small files stored by your browser on your computer, and when you access our website, the information in those cookies is sent to our server along with your browser’s request (a “request” is, essentially, your web browser asking our server for information, and the server responds by sending you a webpage).

We use two types of cookies on our website - required cookies, which enable basic functionality and allow users to log in to our site, and analytics cookies. Analytics cookies let us track how users make use of our website, and let us make decisions about how to improve our website’s user experience.

Our website uses Google Analytics to set these analytics cookies for our website.

Required Cookies

  • _stripe_mid
    Fraud prevention tool used by Stripe (a credit card processing application)
  • ASP.NET_SessionId
    Allows users to log in to the system, and store persistent data between pages

Analytics Cookies

  • uniqueId
    Server-assigned unique ID that tracks how pages are used
  • Google Analytics Cookies
    Google analytics cookies assign a random ID and track how that ID moves around the website. This tracking is not linked in any way to your name or other personal information.
    • _gat_gtag_UA_*
    • _gid
    • _ga
    • _ga_*
    • _gat_gtag_UA_*

We do not use either type of cookie for advertising or marketing purposes.

How will we use your information?

Automatically collected information is used exclusively for the purpose of improving our website and troubleshooting errors. That information is never shared with an outside source except as required by law. We will never buy, sell, or trade your personal information for any reason.

Voluntarily provided information (most commonly your name and contact information) is used for the sole purpose of replying to any inquiries you make to the best of our abilities, or for providing you with requested services. Should you choose to enter into a business or other professional arrangement with us, further usage of your personal data may be required to allow us to fulfill our obligations to you (for example, if you order a workbook from us, we will use your address to mail you your order).

Additionally, all employees of Parkinson Voice Project are subject to a non-disclosure agreement regarding customer and patient data. Unless you choose to allow it, we will never reveal any information that you voluntarily provide to us except as required by law.

Who has access to your data?

We are the only people who have access to your data. We do not share this access with anybody else, except as required by law.

At your direction, or as necessary to fulfill the terms of a contract that we make with you, we may be required to disclose some information to a third party. This disclosure will only occur if necessary for the completion of the work we do for you. For example, if we must contract with a third party such as a parcel service to send you a piece of mail.

In all cases, the disclosure of your personal information will only occur if it is absolutely necessary for the completion of our contract with you, and we will only disclose the minimum amount of information necessary.

How long is your data kept?

Our analytics data is kept forever. However, it cannot be tied to you.

Should you choose to email us, our emails are retained indefinitely as well.

Children’s Privacy

This website is not directed towards children under the age of 18.

How do you exercise your Right to Erasure?

Under article 17 of the GDPR, you have the right to demand that we erase our records of your personal data. There are limitations to this right, but we will always attempt to comply as fully as possible with your "right to be forgotten."

To exercise your right to erasure, please contact us directly by email or post. At:

Privacy Officer
privacy@parkinsonvoiceproject.org
646 N. Coit Road, Suite 2250
Richardson, Texas, 75080
USA

Further Questions?

If you have questions about Parkinson Voice Project’s privacy policy, please don’t hesitate to contact us at:

Privacy Officer
privacy@parkinsonvoiceproject.org
646 N. Coit Road, Suite 2250
Richardson, Texas, 75080
USA

All of your correspondences are confidential, and we will never share any of your personal information with any third party, except as required by law, or to fulfill our obligations to you as outlined above.